Hayley Okines

Courtesy Hayley Okines/Facebook

Hayley Okines, dubbed by the media as the "100-year-old teenager," died Thursday. She was 17.

Per the BBC, her mother Kerry announced the news in a Facebook post, writing, "My baby has gone somewhere better. She took her last breath in my arms at 9.39pm."

Hayley, who had the rare premature aging disease Progeria, had been told she wouldn't live past the age of 13. She did, though, going on to write an autobiography at age 14 titled Young at Heart: The Likes and Life of a Teenager With Progeria. She was an advocate for raising awareness about the rare genetic condition, too, participating in several TV documentaries discussing the disease and later enrolling in a U.S.-based clinical drug trial. Her story won over the hearts of many people around the world—including Justin Bieber!

Hayley Okines, Justin Bieber


Thanks to a Twitter campaign, Hayley met the Biebs back in 2013. She also met Prince Charles, Kylie Minogue, The Wanted and more stars in her short but star-filled life. As her mother told The Mirror, "We decided that if she wasn't going to live long, at least we would make her life special and pack it with wonderful memories."

Hayley tried not to dwell on the genetic condition that would most likely limit her lifespan. "I don't think about dying and just enjoy life," she said last year.

"In many ways, I feel I've been lucky," she added. "Because of this I've met more people and done more than many do in a lifetime."

Many took to Twitter to reflect on Hayley's life, including Nathan Sykes.

Our thoughts and prayers are with her family and friends.

  • Share
  • Tweet
  • Share

We and our partners use cookies on this site to improve our service, perform analytics, personalize advertising, measure advertising performance, and remember website preferences. By using the site, you consent to these cookies. For more information on cookies including how to manage your consent visit our Cookie Policy.